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1sttimer
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Would love to hear some success stories after recurrent MC and your 'how'!

Jun 4th, 2018, 09:51 AM   #1
 
Hi all. As many of you know I am a loooooong term TTC'er and I come across many of you in the various feeds often, but I was wondering if any of you who have had recurrent MC's would be willing to share your story with me? I suppose I'm just looking to see what different peoples approaches have been to overcoming RMC. Especially any that were 'unexplained'. The reason I'm asking is I guess that whilst I battle continuously to find the 'why' to my current situation I would be really keen to hear of people who have either been down this route and found success (especially if you've seen Dr Quenby at Cov uni hospital) OR people who have just kept trying without any intervention / treatment and gone on to be successful. I see on this forum that there are so many of us who have been LTTTC'ers and suffered recurrent MC and found their happy ending which is amazing, and would just love to hear how you got there, because right now - it seems like this is a never ending journey of disappointment xx

Just for ref: I'm 34, I've tried progesterone supplementation and taking 85mg of aspirin before my last 2 failed pregnancies so those don't appear to work for me. I've also tried acupuncture and a we're on a strict fertility diet, which has reduced the time it is taking me to fall pg but not helping with the holding on to it and we've had lots of tests already. I have had the thrombophilia screening, antiphospholipids etc, all clear, but did have a bad hematoma in the pregnancy I lost at 16 weeks, I've had MTHFR testing, Vit D, factor V, karyotyping, day 21 etc etc. I am currently awaiting an appointment with Dr Quenby at Cov for further testing.

Thanks in advance for this, I know how hard it can be to go over old ground so I know this post wont be for everyone, but for anyone reading it who is also going through a long and heartbreaking journey, I thought it might be helpful to have a thread running that offers others, as well as myself some stories of hope. xx
 
 

 
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LucyC
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Jun 4th, 2018, 13:15 PM   #2
 
Just popping by to say great thread 1sttimer, I love reading success stories it just gives you so much hope xx
 
 
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1sttimer
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Jun 4th, 2018, 13:26 PM   #3
 
Ar good, hopefully it will be something where people can see some of their own issues in other's peoples positive outcomes! What's your situation Lucy (if you don't mind me asking of course tell me to be quiet if you'd rather not say!) x
 
 

 
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LucyC
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Jun 4th, 2018, 18:20 PM   #4
 
Yes course, don’t mind at all. I’m 31, currently have no children and started ttc in Feb 17, we fell pregnant really quickly and thought we were so lucky until we found at at 11 weeks that we’d had a mmc. We waited for my first period to arrive after the mmc and started trying again and 4 cycles later were pregnant again, that ended in a mc at 6 weeks. We then got referred to the recurrent mc clinic at our local hospital who found I had low vitamin d levels and thought that I had Hughes syndrome, jan 18 we found out we were pregnant again and that time we took heparin but again ended in mc at 6 weeks. We waited to hear off our clinic about what would be the next steps and kept getting fobbed off so we made a decision to see dr rai at at Mary’s privately. We’ve seen him twice now and had more tests, he put dh on wellman because of the antioxidants being really good for any potential sperm dna damage, he’s found that I had slightly higher thyroid levels than he’d like to see, they were still in the average range but not for ttc so has put me on thyroxine, he has confirmed that I don’t have Hughes syndrome but my blood doesn’t break down clots properly so will need heparin from bfp and he referred me for an sis scan which found scar tissue in my uterus which has been removed and were now back to ttc to see if all of that makes a difference.

I’ve heard such good things about professor quenby so I’d be interested to hear how you get on when you go to see her xx
 
 
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PeanutButter
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Jun 5th, 2018, 08:48 AM   #5
 
I had 6 mcs before my daughter, which was unexplained... I took aspirin from 4 weeks pregnant and that seemed to work. Ikno you've said you've taken aspirin though. Have you had all tests nhs and private as the nhs doesn't provide all tests X
 
 

 
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tinselcat
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Jun 5th, 2018, 08:52 AM   #6
 
Hi 1sttimer, having been on these boards for over 7 years I have seen a number of success stories over the years with recurrent miscarriages.

Eg carnat22 first had 3 early losses (between 6-8 weeks) and has then gone on to have 3 babies (including a surprise baby).

There was another post on here who lost 2 babies at around 14 and 16 weeks which was then traced to a large number of natural killer cells.

I know my clinic, Zita west, has been successful in treating a number of women with a different type of recurrent miscarriages problems so I think there are plenty of avenues to try and find some answers and sometimes it's literally unexplained but can change as in carnat's case.
 
 
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1sttimer
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Jun 5th, 2018, 09:32 AM   #7
 
Thanks so much Lucy, wow you've really been through it too, it's so unfair isn't it! Do you mind me asking what the costs are like with going privately at St Mary's? Also, with your blood clotting issue, was this found out as a result of an antiphospholipids test or something different? As I've had the thrombophilia screening that the NHS offer but I wondered if it goes into more detailed tests at st marys?

Hi Peanutbutter, thank you! My goodness, 6! How awful...yes I've heard that's worked for so many but sadly not me - I've had all the NHS tests but yet to have the specialist tests for NK cells etc, this is what I'll get at Dr Quenby's appointment I believe fingers crossed. I've long wondered if it might be this, either that or a DNA fragmentation issue. But hubs literally couldn't be any healthier at this point and has lost a lot of weight so if it's that it must be improving!

Thanks Tinselcat, it's so interesting you said about someone losing their babes at 14 and 16 wks due to NK cells as I've always associated that with early miscarriage so wondered if I could have that if I carried until 16 wks last year, but this would suggest that NK cells are also related to late MC. I'm even more convinced now that this is my issue.

Thanks so much ladies. ... keep them coming anyone else checking in to read, this is really handy info.
 
 

 
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Lulla Bell
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Jun 5th, 2018, 11:27 AM   #8
 
Hello, I had 6mc before this pregnancy Im currently 19+5
I honestly couldn't tell you why I had had Mc's I had all the tests done and everything came back fine, One of my mc's was confirmed to be a little girl with turners syndrome, so that one was explained.
But the rest are unknown, and doctors had said we just may not be able to carry.
This pregnancy happened when we had stopped trying as we had started the adoption process, I phoned the drs and begged them to put me on Progesterone which I took until I was 16 weeks.
I really wish you all the best,
We had totally given up hope and just got incredibly lucky.
Lots of Good vibes for you xx
 
 

 
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Jun 5th, 2018, 11:37 AM   #9
 
Hi Lulla, thanks so much for that - do you mind me asking how far along you were with them all? I'm so intrigued by stories when it all works out despite no additional treatment (although progesterone may have just been the thing for you!) Gives me such hope x
 
 

 
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LucyC
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Jun 5th, 2018, 13:33 PM   #10
 
Quote:
Originally Posted by LucyC View Post
Yes course, don’t mind at all. I’m 31, currently have no children and started ttc in Feb 17, we fell pregnant really quickly and thought we were so lucky until we found at at 11 weeks that we’d had a mmc. We waited for my first period to arrive after the mmc and started trying again and 4 cycles later were pregnant again, that ended in a mc at 6 weeks. We then got referred to the recurrent mc clinic at our local hospital who found I had low vitamin d levels and thought that I had Hughes syndrome, jan 18 we found out we were pregnant again and that time we took heparin but again ended in mc at 6 weeks. We waited to hear off our clinic about what would be the next steps and kept getting fobbed off so we made a decision to see dr rai at at Mary’s privately. We’ve seen him twice now and had more tests, he put dh on wellman because of the antioxidants being really good for any potential sperm dna damage, he’s found that I had slightly higher thyroid levels than he’d like to see, they were still in the average range but not for ttc so has put me on thyroxine, he has confirmed that I don’t have Hughes syndrome but my blood doesn’t break down clots properly so will need heparin from bfp and he referred me for an sis scan which found scar tissue in my uterus which has been removed and were now back to ttc to see if all of that makes a difference.

I’ve heard such good things about professor quenby so I’d be interested to hear how you get on when you go to see her xx
The blood clotting disorder I have came up on the TEG test which I think only St Mary’s do. It actually found that I can’t take aspirin in pregnancy and it has to be heparin, I don’t really understand why though.

The antiphospolipid tests done by the nhs found raised antibodies and they thought it was Hughes but st Mary’s repeated and nothing was found on their tests and mr rai said it can really depend on the lab where they’re done.

I’ve paid about £1,500 so far I think and that was for the initial consultation, the sis scan (this was the most expensive thing at nearly £500) the teg test, repeat aps test, repeat thyroid test, mthfr test and follow up consultation. I took my nhs results with me so at least didn’t have to repeat any of the other tests and saved a bit of money there.

St Mary’s don’t test for high nk cells though so if you have a feeling it might be that then it’s definitely worth having professor Quenbys test first to confirm that. Have they said how long it will be until you get to see her? Xx
 
 
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Jun 5th, 2018, 15:36 PM   #11
 
Quote:
Originally Posted by LucyC View Post
Quote:
Originally Posted by LucyC View Post
Yes course, donít mind at all. Iím 31, currently have no children and started ttc in Feb 17, we fell pregnant really quickly and thought we were so lucky until we found at at 11 weeks that weíd had a mmc. We waited for my first period to arrive after the mmc and started trying again and 4 cycles later were pregnant again, that ended in a mc at 6 weeks. We then got referred to the recurrent mc clinic at our local hospital who found I had low vitamin d levels and thought that I had Hughes syndrome, jan 18 we found out we were pregnant again and that time we took heparin but again ended in mc at 6 weeks. We waited to hear off our clinic about what would be the next steps and kept getting fobbed off so we made a decision to see dr rai at at Maryís privately. Weíve seen him twice now and had more tests, he put dh on wellman because of the antioxidants being really good for any potential sperm dna damage, heís found that I had slightly higher thyroid levels than heíd like to see, they were still in the average range but not for ttc so has put me on thyroxine, he has confirmed that I donít have Hughes syndrome but my blood doesnít break down clots properly so will need heparin from bfp and he referred me for an sis scan which found scar tissue in my uterus which has been removed and were now back to ttc to see if all of that makes a difference.

Iíve heard such good things about professor quenby so Iíd be interested to hear how you get on when you go to see her xx
The blood clotting disorder I have came up on the TEG test which I think only St Maryís do. It actually found that I canít take aspirin in pregnancy and it has to be heparin, I donít really understand why though.

The antiphospolipid tests done by the nhs found raised antibodies and they thought it was Hughes but st Maryís repeated and nothing was found on their tests and mr rai said it can really depend on the lab where theyíre done.

Iíve paid about £1,500 so far I think and that was for the initial consultation, the sis scan (this was the most expensive thing at nearly £500) the teg test, repeat aps test, repeat thyroid test, mthfr test and follow up consultation. I took my nhs results with me so at least didnít have to repeat any of the other tests and saved a bit of money there.

St Maryís donít test for high nk cells though so if you have a feeling it might be that then itís definitely worth having professor Quenbys test first to confirm that. Have they said how long it will be until you get to see her? Xx

Hi Lucy,
This is so helpful thank you. Fortunately I paid a while back through my holistic fertility consultant to have MTHFR, (which came back heterozygous) TSH, T2, T3 and reverse T3 thyroid tests, I've also had Vitamin D and those you mention from the NHS tests (factor V, prothrombin, antiphos etc) so that would possibly save me some money. But A TEG test I've def not had and as I've had bleeding issues in every pregnancy, and a big SCH (hematoma) which they think caused my MC at 16 wks, blood clotting issues cant be ruled out, so it's also interesting what you said about aspirin being no good for you.

You're absolutely right about St Mary's, originally I was getting booked in there until I realized they didn't do NK so I quickly switched over as I believe Dr Quenby does both - fortunately her waiting list was also much shorter! I was going to have to wait 4 months to St marys whereas I have an appoint in Cov on 20th July ...

I'm so sorry you are going through this - I really hope we get our happy ending soon!! Maybe we'll be lucky enough to get as far as the 2nd tri threads together at some point! Watch this space !! xx
 
 

 
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Emily0505
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Jun 5th, 2018, 16:53 PM   #12
 
I had 3 miscarriages between my son and daughter.

My first and second were both mmc the first at around 6 weeks and the second at 8 weeks. My third mc was a bit of a medical mystery all round as dates, hormone levels etc didn't add up. Was a suspected ectopic but resolved itself naturally.

We were referred to the Recurrent Miscarriage Clinic and had tests done, all of which came back as normal. When I fell pregnant with my daughter, I didn't do anything any differently to the pregnancies I'd lost as the RMC Dr said there was no point in taking aspirin if you have no clotting issues and progesterone won't stop a mc. For whatever reason it worked out with my daughter. We'll never know why we lost the other three, it was basically put down as 'one of those things!'

XX
 
 

 
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Lulla Bell
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Jun 5th, 2018, 22:53 PM   #13
 
Hi yeah of course
1-7 weeks
2- 6 weeks
3- MMC found out at 11+5 that baby had stopped growing at 6+1 ( had turners syndrome)
4- 6 weeks
5- 5+1
6- 5+2

I really think the asprin and the progesterone helped.
This time is the only time I've carried this far. But who knows. Nothing is proven :/
 
 

 
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Jun 6th, 2018, 08:52 AM   #14
 
Thanks Emily (I sound like a stuck record but I'll say it again..) that's so interesting to know, especially after you'd had one previously too. Maybe there is hope and we've just had some horrible luck...who knows!

Lulla, I've heard so many stories like yours with the early losses being quickly remedied by progesterone and/or aspirin - It sounds like you could be pretty sure that is your answer! You perhaps just needed it to help keep things balanced during that first trimester...either way its bloody brilliant! I look forward to following the rest of your journey! xx
 
 

 
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miamia
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Jun 8th, 2018, 15:49 PM   #15
 
No personal experiences, but a daughter of my accountant had 3 failed IVF-s and 3 mcs. She did acupuncture, took vit D and combined IVF with DE and PGS NGS. They are parents of 3-month twins now.
 
 

 
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