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Babbybo
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Fertility treatment question

Aug 8th, 2017, 22:28 PM   #1
 
Hi, hoping someone can help me as I'm feeling a bit lost. Been referred to fertility clinic and had first appointment. I was told ovulation wasn't right but no explanation was given (I was so shocked at the time and didn't manage to get any answers from the consultant about what exactly it meant).
Anyway, he said I should have HSG (I got this done&seemed fine) and treatment would be agreed at review appointment but likely to be injections and I would need to be reviewed twice a week. This would be for a maximum of 6mths before it would be stopped& possibly IVF. He did say IUI wouldn't be of any further benefit. Does any of this sound right? I'm asking as GP has never heard of it without IVF?!
Also is it likely that treatment would start immediately after review appointment. I know it's trivial in the grand scheme of things but we were supposed to go on holiday but I don't want to delay things. At same time if treatment won't start immediately I could b back before it does. Anyone have any experience?
Sorry for the long post&ramble but I'd really appreciate any help at all.

Thanks
 
 
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MoominGirl
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Aug 9th, 2017, 21:03 PM   #2
 
Sorry to hear you've had a bit of a confusing time at the fertility clinic. It sounds like we're at a similar stage to you so I can't help with some of you're questions but can try with some.

We had our first appointment a few months ago and truthfully we were more confused when we left than when we started!! We are NHS, apologies if I'm assuming wrongly that you are too? My personal experience was that our consultant was more concerned about pushing us into IVF without really justifying her reasoning and I admit now that perhaps I was a little naive expecting proper investigation into our difficulties before aggressively pushing us into a physically, emotionally and potentially financially draining procedure (we only get one funded cycle in our area). We tried several times to have our questions answered to the point where she basically pushed out the door as we'd ran out of time!! Perhaps if she'd given us straight answers we would have covered more!!!

I think what I'm trying to say is that if I was lucky enough to have been able to replay that appointment I would not have stood for half the amount of crap we put up with and I wouldn't be signing up to anything until I was satisfied that the recommendation is the right thing for us as a couple. I realise our experience was particularly appalling so I won't go into too much detail here as I know it's in no way representative of a normal fertility appointment. We are currently looking to be referred to another clinic as it was truly that horrific.

I think my advice would be to jot down a list of questions and things you don't understand and take it with you to the review appointment and basically refuse to leave until you've got the answers you need. You need to trust the people treating you and be comfortable with the treatment plan. I realise I've rambled a bit but I hope this helps a little. Good luck!!
 
 
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snowbee
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Aug 10th, 2017, 14:33 PM   #3
 
Hiya,
Sounds like they are going to start you with injectables to bring on ovulation. I also had ovulation induction (although not with injectables I had clomid, which is pills). If that is what they agree to at your review then you will most likely start on your next cycle. If you don't have natural cycles then they will give you medication to induce a bleed and then start from there. The monitoring is most likely to be ultrasound scans to see how many follicles grow and see that an egg is released. They can also give you less or more medication to make sure you are on the correct dose. Blood tests will also confirm ovulation.
Hope that helps. Round 7 worked for us and we now have a 15 week old.
 
 

 
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Babbybo
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Aug 10th, 2017, 19:43 PM   #4
 
Thanks MoominGirl. I found the consultant dismissive & unwilling to answer any questions so I was angry when I came out. I cant imagine next time will go any better even if I am prepared. It's not good that we have to rely on forums and Google to get informed. We are on NHS. I was concerned about the length of time for appointments etc but he told us at this early stage he wouldn't recommend trying to go private as we wouldn't be saving much time which appears to have been correct.
I hope you get on better next time. Good luck. Let me know how u get on sure.
 
 
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Babbybo
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Aug 10th, 2017, 20:05 PM   #5
 
Hi Snowbee. Thankyou so much for your response. I had thought I might be given clomid but when I asked about it he just ignored me. From the internet I think the injections may be more effective though obviously it seems to require a lot more monitoring which he explained was to reduce risk of multiples.
I've read they tend to start on cd3 or cd4. I'll be cd2 at my appointment-do you think they would be likely to start then or wait until next cycle?
 
 
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Babbybo
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Aug 10th, 2017, 20:07 PM   #6
 
I meant to say Congratulations Snowbee. Good to hear success stories. Hope yous are both doing well.
 
 
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MoominGirl
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Aug 10th, 2017, 21:34 PM   #7
 
I was also surprised by the fairly short waiting time from GP referral to actually being seen in the fertility clinic. All the investigations etc before and after seem to have taken forever in total though!!

I couldn't get over the lack of information about something so important. Obviously I've been the serial Googler but it was shocking how many questions my husband asked me afterwards. All fairly basic things that should have been covered.

One of the main issues was the fact that the consultant seemed to have it her head that my husband's slightly below optimum sperm motility meant we had zero chance of conceiving naturally. Not reduced. Zero. As a result she flatly refused any further tests for me such as HSG so it's good you're getting investigations even if the attitude was a bit crap. I actually got my HSG arranged through gynaecology in the end as I was referred there as I need to get an endometrial polyp removed. I've actually ended up thankfully for the damn polyp as without it I never would have had a gynae referral and definitely wouldn't have had an HSG. Also her ability to avoid questions and fail to back up any of her recommendations was really something.

We will not be having a repeat of this next time. I will not be leaving without getting the answers we deserve. I've warned OH to be prepared to be mortified haha.
 
 
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lisey
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Aug 10th, 2017, 23:56 PM   #8
 
We found the NHS fertility appointment to be useless too, we felt like items on a conveyor belt. Really didn't care at all. We were only allowed investigations through them, no treatment as I have a son from a previous relationship.
I have heard thay IUI is not much more effective than trying naturally (unless there is a sperm issue then may help things).
We went private in the end and my consultant said IUI was pointless for us, I don't think it's unusual for them to suggest IVF early on, this is because the chances of success are higher and I am assuming more cost effective for them to go straight to it, rather than spending money on IUIs which have lower rates of success.
Just to say, I had IVF and it's really not that bad, it's a lot of appointments, injections and obv anticipation but on the whole it is fine. I didn't find it that hard emotionally or physically. It was very expensive as we had to go private but worth every penny.
Go armed with a list of questions to future appointments, that's what I did in the end as always forgot everything once was in there xx
 
 

 
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MoominGirl
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Aug 12th, 2017, 14:14 PM   #9
 
Thanks for sharing your experience lisey. It's good to hear that you had such a positive experience with IVF. I hope I don't sound like a real misery but I'm the sort of person who prepares for the worst but hopes for the best if you know what I mean. We have no children so we're entitled to NHS funding but only for one cycle so it's really important to us that we make it count regardless of the outcome. The support from the fertility consultant was non-existant and I still can't get over her refusal to investigate fully. I'm so lucky that the gynaecologist I've been seeing as been so supportive. She was more that happy to do the investigations so clearly they are justified. She even offered them to me after I had described our situation. I really thought I'd need to fight after my fertility appointment and had a whole speech prepared!! I didn't even need it!!

I totally understand why they go straight to IVF as with the better success rates compared to IUI, it probably costs less in the long run. I just need to feel that it's the right decision for us rather than being presented as a 'quick fix' which was exactly how it felt. When we finally see out new clinic (I'm in no rush), we shouldn't have to fight for investigations as everything should be done before then. It can't possibly be worse than the last time.
 
 
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lisey
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Aug 12th, 2017, 18:22 PM   #10
 
I understand completely, you have to feel like you have tried all you can before IVF as it is a big thing. It is terrible when they won't do investigations. The fertility department refused me a laparoscopy, even though they suspected I had endometriosis, luckily the gynae department did it instead.
Have you had your day 3 bloods done? xx
 
 

 
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MoominGirl
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Aug 12th, 2017, 19:55 PM   #11
 
I've had all my bloods done. Only issue I've ever had is high prolactin (I have a prolactinoma). As I've been having treatment for that for a while the levels have been normal for well over a year and shouldn't be causing any problems. I've also had 2 pelvic ultrasounds (2nd was to confirm the polyp they saw on the first one). HSG showed my tubes are clear though it took 2 lots of dye to get them flushing. I'm hoping they've benefited from a good clean out!!

OH has had sperm analysis done. First 2 samples showed low motility which according to the fertility doctor meant we had no hope of conceiving naturally and there was nothing we could do to improve his sperm. IVF is therefore our only option so there's no point in investigating me further. I'm so grateful that the gynaecologist has arranged the investigations instead. Even though everything has come back normal, it's important to me that I know we've done everything we can. If the fertility doctor had managed to shut the hole in her face long enough to let me finish a sentence, perhaps she would have understood that Also, after 4 months of vitamin supplements, better diet and exercise, OH's motility has improved significantly and is now well within the normal range. One of the many reasons she hasn't filled me with any confidence in her expertise.
 
 
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Babbybo
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Aug 12th, 2017, 20:31 PM   #12
 
Thanks Lisey. Great to hear your experience (and even better u had a successful one). I have to say I would be anxious about starting IVF tho at this stage it looks like I wont even b placed on the list for at least another 6mths and then who knows how long after that.
MoominGirl-hope ur husband isn't too mortified��
 
 
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MoominGirl
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Aug 12th, 2017, 22:09 PM   #13
 
I'll do my best not to look like a nutter but like I said to OH, I'm not making any promises!!

It's funny how things seem to differ between areas - funding is crap where I am but they're doesn't seem to be much of a wait time. The impression I got was that if it wasn't for the polyp, they would have pushed me to start IVF on my next cycle. For me it also feels too soon. I'm definitely not saying we won't do it but I think I want to give us at least another 6 months knowing we have good sperm, clear tubes and no polyps in the way!!
 
 
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Babbybo
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Aug 12th, 2017, 23:47 PM   #14
 
Ha. I'm the opposite. I know there's obviously something not right&am quite happy for whatever to be done to make it right tho I don't feel like time is on my side so I need things to move alot quicker than they do. Looks like 12-18mths waiting list for IVF so that's a non starter for me.
Why does it have to b so difficult?
 
 
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MoominGirl
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Aug 13th, 2017, 12:04 PM   #15
 
It's so much harder than it needs to be I think. It's as if they get desensitised to just how important this is to each individual couple probably because they see it every day and it just seems the norm.

It really felt like 'oh you haven't conceived yet, doesn't matter why or if you have questions, you need IVF, next please!' The fact is that we know I have a polyp and we've already been told that this may stop implantation. So surely we should remove that first and see if that's been the problem all along? I think IVF is offered as a quick fix solution not necessarily because it's needed but because they can. It's therefore really sad when you hear of long waits for people who already have less time on their side. The post code lottery with fertility treatment is also really poor. I'm lucky that I'm still only 30 and very prepared to dig my heels in to ensure that it's done our way.
 
 
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